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September 22, 2023
We are very pleased to announce a special Storytime+PLAY at The Meet Up at Momease, happening Friday Sept 29th, 2023 from 1-3 PM.
In honour of the National Day for Truth and Reconciliation, we will be welcoming Special Guest Sky Bellefleur from the Victoria Native Friendship Centre for an afternoon of stories and puppetry. The storytelling will be age-appropriate for little ones from 2-5 years, and will focus on amplifying Indigenous voices and stories.
Sky works at the Victoria Native Friendship Centre with the Health Team, the Bruce Parisian Library, the Career, Employment and Education Department, and also with the Elders Programs and the Indigenous Language and Culture Team. Sky enjoys reading stories for the Bruce Parisian Library in their Storytime Corner, and is featured on their Facebook page. Sky has lived in Canada for more than 40 years, and has lived on Vancouver Island for 5 years. She is honoured to be able to live, work and play on the unceded lands of the Lekwungen peoples.
Momease will be donating 100% of the profits from this event to the Victoria Native Friendship Centre, so please consider visiting us and sharing in this very special Storytime+PLAY at The Meet Up! Click here to register now for September 29th.
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October 27, 2024
October 27, 2023
October 21, 2023
In September, Torin was referred to a Pediatric Endochrinologist in order to receive endochrinology clearance prior to his surgery in Chicago. After discussing the ongoing management and the stability of his Hypothyroidism diagnosis (a very commonly-seen hormonal disorder in individuals with Down syndrome), we debated whether to schedule an ACTH (Adrenocorticotropic Hormone) Stimulation Test at the Pediatric Daycare Unit at Victoria General Hospital to check Torin's adrenal response to stress.
About a week after the stim test, we received a call from Torin's Endochrinologist. Much to their surprise, Torin's cortisol levels barely changed AT ALL following ACTH administration. He was diagnosed with Adrenal Insufficiency, also knows as Cortisol Dependency.
It's a HUGE relief that this condition was caught prior to Torin's liver surgery. We quickly begin daily oral Predinisone treatments to help manage his cortisol levels, and we have a modified emergency plan in place that involves immediate intramuscular injection of steroid hormone in the case of a medical illness or emergency. Such an emergency could be a severe head bump, a fever with vomiting, a broken bone or a car accident. The injectable steroid will help Torin's body cope with the stress associated with a traumatic event, keeping his blood pressure and blood sugar levels stable. It could absolutely save his life in the case of a severe trauma.
We also have a modified plan in place for the surgery to fix his Portosystemic Liver Shunt in Chicago at Lurie Children's Hospital this November. He will receive an increased "stress dose" or oral Prednisone (steroid) in advance of his surgery and prior to invasive tests or general anesthetics. Throughout his procedures and surgeries, his cortisol levels will be closely managed and he will receive IV doses of steroids while unconscious.
We are so relieved to be armed with this new diagnosis and with better knowledge of how to help keep Torin safe and healthy: both during his day-to-day activities, and throughout his upcoming international medical treatments. As always, we are extremely grateful to have access to such exemplary healthcare in our city, as well as amazing medical specialists to help manage Torin's health and wellness.
