- home
-
by category
-
by brand
-
gift registry
- BLACK FRIDAY SALES
- best sellers
-
on sale
- Momease eGift Cards
-
The Meet Up at Momease
- what's new
- blog
September 20, 2019
OUR TRIBE // ♥️
We are so thrilled to share our new Milestone Family Film with you (link in the write up below).
🌿
Filmed on September 1st at the University of Victoria (where Adam & I met 21 years ago at our very first class, on the very first day of university), shooting this video with the talented Tenille at Bebe Films was such a special event for our family.
♥️
It may be cliché to say, but it’s so true that we easily forget so many little things about day to day life: where we were at a particular moment in time; how our little ones smiled while they took their first few steps; the sound of our children’s voices calling out in play. These are the little things that make this film so precious to us - Tenille captured the spirit of our family in a way that we couldn’t have imagined, and we are so pleased to be able to treasure this video over the years to come.
🌿
If you’re looking for a unique way to document the birth of a new baby, a first birthday, first steps, or even just a day-in-the-life of your family, I highly recommend looking into a family film by this amazing local mama! The experience & results far exceeded our expectations - but just be sure to stock up on all that Kleenex!
🎞 McLean Milestone Family Film: https://vimeo.com/358933958
Comments will be approved before showing up.
October 27, 2024
October 27, 2023
October 21, 2023
In September, Torin was referred to a Pediatric Endochrinologist in order to receive endochrinology clearance prior to his surgery in Chicago. After discussing the ongoing management and the stability of his Hypothyroidism diagnosis (a very commonly-seen hormonal disorder in individuals with Down syndrome), we debated whether to schedule an ACTH (Adrenocorticotropic Hormone) Stimulation Test at the Pediatric Daycare Unit at Victoria General Hospital to check Torin's adrenal response to stress.
About a week after the stim test, we received a call from Torin's Endochrinologist. Much to their surprise, Torin's cortisol levels barely changed AT ALL following ACTH administration. He was diagnosed with Adrenal Insufficiency, also knows as Cortisol Dependency.
It's a HUGE relief that this condition was caught prior to Torin's liver surgery. We quickly begin daily oral Predinisone treatments to help manage his cortisol levels, and we have a modified emergency plan in place that involves immediate intramuscular injection of steroid hormone in the case of a medical illness or emergency. Such an emergency could be a severe head bump, a fever with vomiting, a broken bone or a car accident. The injectable steroid will help Torin's body cope with the stress associated with a traumatic event, keeping his blood pressure and blood sugar levels stable. It could absolutely save his life in the case of a severe trauma.
We also have a modified plan in place for the surgery to fix his Portosystemic Liver Shunt in Chicago at Lurie Children's Hospital this November. He will receive an increased "stress dose" or oral Prednisone (steroid) in advance of his surgery and prior to invasive tests or general anesthetics. Throughout his procedures and surgeries, his cortisol levels will be closely managed and he will receive IV doses of steroids while unconscious.
We are so relieved to be armed with this new diagnosis and with better knowledge of how to help keep Torin safe and healthy: both during his day-to-day activities, and throughout his upcoming international medical treatments. As always, we are extremely grateful to have access to such exemplary healthcare in our city, as well as amazing medical specialists to help manage Torin's health and wellness.
